![]() Was placed on various meds by psychiatrist. Then at days i sleep on end due to fatigue. Only remained on Humira, prednisone and pain meds. I slowly started to go off most meds in order to test. Then realised various other meds also triggered my flares and increased my pain. I did however realise the following: Stilnox triggered flares. After long and painful 3 and half years, i am now on Humira biologics, 30mg prednisone and various pain meds, anti inflammatory and anti depressants. Started on 60mg prednisone p/day, metrotrexate, pain meds, and general anti inflammatory meds. Was diagnosed with sero-negative rheumatoid arthritis, ankolysing spondylitis, pleuritis, vasculitis, chronic fatigue syndrome, fibro, basically pain in all joints, muscles, head, chest, skelet (mostly upper legs), etc. Had to stop next to road and sleep for hours sometimes. Permanent high CRP, pain in muscles and skelet, most in legs, extremely tired, chronic fatigue. Stopped the cholesterol meds in Des 2014. Started getting muscle and skeletal pain. This, i believe triggered my final down spiral. Nov 2014 went on meds for high cholesterol. Suffered from stess related depression and insomnia. Was taking Wellbutrin, Urbunol and Stilnox for about 18 months before i collapsed. I worked under immense stress for previous 10 years before i became ill. At first diagnosed with viarious non related illnesses. High CRP, excruciating pain in legs, upper. I would like to share my story, hoping it could help others. Thank you for sharing your experiences and wisdom with me, as I am feeling sad, overwhelmed, and very concerned. I take eliquis, hydroxychloroquine, aspirin, wellbutrin, and vitamin d. I have genitourinary atrophy, sex is difficult. Because I am hypercoagulable I have been unable to take estrogen, but my rhuemetologist just said that it would be safe for me to use vaginal estrace cream because he said only trace amounts would end up in my blood. ![]() I am 54, post menopausal, and still get hot and cold flashes, sometimes every 15 minutes. I also have autoimmune diseases called Antiphospholipid Syndrome (APS) and Undifferentiated Connective Tissue Disease (UCTD). I went to the Mayo Clinic and they said I was negative for the Sjogren's blood test and think the vaccine reactivated a dormant virus ( like shingles or epstein barr - I had Mononucleosis in the 80s) and the virus may have attacked my vagus nerve. I also had about 20 days of a flare of Sjogren's-like symptoms, I stopped producing saliva at one point. I started having problems 14 days after my second Moderna vaccine. When experiencing a flare, do any of you have a lack of appetite and also an upset stomach? The upset stomach is hard for me to explain, food is not appealing to me and I am almost slightly nauseous. I recently had a urinalysis sent to the lab and I am awaiting results. I have intermittent bouts of urinary frequency, and urethral pain. I just secured an appointment with a Urogynecologist on May 18th to be tested for IC. ![]()
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